The Association of Pediatric Gastroenterology and Nutrition Nurses
Help & Hope for Children with Digestive Disorders GIKids
Journal of Pediatric Gastroenterology and Nutrition Journal of Pediatric Gastroenterology and Nutrition

Public Information Links

Rare Diseases

National Institutes of Health Office of Rare Diseases
National Institutes of Health
6100 Executive Boulevard
Room 3B01, MSC 7518
Bethesda, MD 20892-7518
Telephone: 301-402-4336
Fax: 301-480-9655

National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Toll Free Number: 800-999-6673 (voicemail only)
Phone Number: 203-744-0100
Fax: 203-798-2291

National Reye Syndrome Foundation
Toll Free Number: 1-800-233-7393 (US only)
Telephone: 419-636-2679
Fax: 419-636-9897