The Association of Pediatric Gastroenterology and Nutrition Nurses
Help & Hope for Children with Digestive Disorders GIKids
Journal of Pediatric Gastroenterology and Nutrition Journal of Pediatric Gastroenterology and Nutrition

Public Information Links

Liver Disease

Alagille Syndrome Alliance
10500 SW Starr Drive
Tualatin, OR 97062
Telephone: 503-885-0455

Alpha 1 Association
2937 SW 27 Avenue, Suite 106
Miami, FL 33133
Toll Free Number: 800-521-3025
Fax: 305-648-0089

Alpha Net
2937 SW 27th Ave.
Suite 305
Coconut Grove, FL 33133
Toll Free Number: 800-577-2638

Alpha One Foundation
2937 SW 27th Avenue
Suite 302
Miami, Florida 33133
Toll Free Number: 877-2-CURE-A1
Fax: 305-567-1317

Alpha-1 Research Registry
c/o Medical University of South Carolina
Division of Pulmonary Critical Care Medicine
96 Jonathan Lucas St. STE 812-CSB
PO Box 250623
Charleston, SC 29425
Toll Free Number: 877-886-2383
Fax: 843-792-0297

American Association for the Study of Liver Diseases
1001 North Fairfax, Suite 400
Alexandria, VA 22314
Telephone: 703-299-9766
Fax: 703-299-9622

American Liver Foundation
75 Maiden Lane
Suite 603
New York, NY 10038
Toll Free Helpline: 800-GO-LIVER (465-4837)
Telephone: 212-668-1000
Fax: 212-483-8179

American Porphyria Foundation
4900 Woodway, Suite 780
Houston, TX 77056-1837
Toll Free Number: 1-866-APF-3635
Fax: 713-840-9552

Canadian Alpha-1 Antitrypsin Deficiency Registry
Toronto Hospital, Western Div.
Edith Cavell Wing, Suite 4-011
399 Bathurst Street
Toronto, Ontario M5T 2S8 Canada
Toll Free Number: 1-800-352-8186
Fax: 416-603-5020 or 416-603-0348

Canadian Association for the Study of the Liver
34 Eglinton Avenue West
Suite 323
Toronto ON M4R 2H6 Canada
Telephone: 416-847-0053
Fax: 416-847-0054

Canadian Liver Foundation
National Office:
2235 Sheppard Avenue East, Suite 1500
Toronto, ON M2J 5B5 Canada
Toll Free Number: 1-800-563-5483
Fax: 416-491-4952

CLASS (Children’s Liver Association for Support Services)
27023 McBean Parkway #126
Valencia, CA 91355
Toll Free Number: 1-877-679-8256

Children's Liver Disease Research and Education Network

Hepatitis B Foundation
3805 Old Easton Road
Doylestown, PA 18902
Telephone: 215-489-4900
Fax: 215-489-4313

Hepatitis C Society of Canada
PO Box 33544
50 Dundurn Street South
Hamilton, ON L8P 4X4 Canada
Toll Free Number: 1-800-652-HepC (4372)
Fax: 905-24-0224

Hepatitis International Foundation
504 Blick Drive
Silver Spring, MD 20904-2901
Toll Free Number: 800-891-0707

Iron Overload Diseases Association
PO Box 15857
West Palm Beach, FL 33416-5857
Telephone: 561-586-8246

PKIDs-Parents of Kids with Infectious Diseases
PO Box 5666
Vancouver, WA 98668
Toll Free Number: 877-55-PKIDS
Fax: 360-695-6941

Scientific Registry of Transplant Recipients
315 W. Huron St., Suite 360
Ann Arbor, MI 48103
Toll Free Number: 1-800-830-9664
Fax: 734-665-2103

TransWeb: Transplantation and Donation
The Northern Brewery
1327 Jones Drive, Suite 201
Ann Arbor, MI 48105
Telephone: 734-998-7314

United Network for Organ Sharing
PO Box 2484
Richmond, Virginia 23218
Patient/Public Information: 888-894-6361

Wilson’s Disease Association
1802 Brookside Drive
Wooster, OH 44691
Toll Free Number: 888-264-1450